Last updated September 21, 2026

CoRare

Building rare-disease communities that turn patient data into research evidence

Rare DiseasePatient EngagementClinical Trial Technology

Rare-disease patients often face long diagnostic journeys, fragmented specialist care and few treatment options. Symptoms and lived experience between clinic visits are poorly captured, leaving clinicians, charities and researchers with an incomplete view of how conditions change over time.

CoRare combines condition-specific communities, symptom tracking and Kora, an educational AI assistant. With patient consent, it structures patient-reported data into longitudinal datasets for registries, research and clinical-trial recruitment.

Key Investor Signals

Shipped on iOS and Android within 11 months of incorporation

Incorporated in September 2025, CoRare released its iOS app in May 2026 and its Android app by August, putting the product on both major mobile platforms within 11 months.

Started onboarding its first rare-cardiac patient cohorts

After launch, CoRare said it was onboarding people with rare cardiac conditions alongside patient charities, clinical teams and research partners.

Selected for DigitalHealth.London’s NHS-focused Launchpad

The programme supports early-stage digital-health companies preparing high-potential products for and social-care adoption.

Other Positive Signals

  • Supported through ’s Growth Catalyst, a UK government innovation programme.
  • CEO Saadiq Moledina was selected for ’s 10-person Ideation Fellowship cohort in 2024.

Team

Dr Saadiq Moledina

CEO and Co-founder

  • Practising NHS doctor and senior cardiology registrar, with frontline experience in cardiovascular disease and patient care.
  • PhD in epidemiology from the University of Cambridge, focused on inequalities in heart-disease care.
  • Author of 35+ medical publications spanning cardiovascular disease, epidemiology and health inequalities.

Dr Jonathan Koß

CPO and Co-founder

  • Previously co-founded NewsButler and served as CEO, building AI software for automated content delivery.
  • Growth & Product Lead at Thryve, working on infrastructure for health-data integration.
  • PhD in economics, with peer-reviewed research on social-media mining for patient-centred drug development.

Philippe N'Techobo

CTO and Co-founder

  • Former Coinbase Staff Software Engineer and founding engineer in its Stablecoin organisation.
  • Former Lead AI Research Scientist at Cerence, working on conversational and language-based systems.
  • Previously an AI researcher at Nuance, with a research background in natural-language processing.

Product

CoRare's mobile app combines condition-specific peer communities, symptom tracking and Kora, an educational AI assistant. It also captures patient-reported data over time, with consent, to support registries, research and clinical-trial recruitment.

Verified rare-disease communities

Users join verified, condition-specific communities, connect with people living with similar rare diseases, and communicate through feeds and direct chat for ongoing peer support.

Symptom and trigger tracking

Users can log symptoms, wellbeing, medications and possible triggers over time, creating a structured history that can reveal patterns between clinical visits.

Curated rare-disease AI guidance

Kora answers questions using curated educational content from medical experts and patient organisations. It provides orientation and information, not diagnosis or treatment advice.

Market Overview

Rare diseases are individually uncommon but collectively affect more than 3.5 million people in the UK. Diagnosis can take years, while patients are dispersed across thousands of conditions and locations, making specialist coordination and consistent evidence collection unusually difficult.

This fragmentation creates demand for tools that keep rare-disease patients engaged between visits and organise consented longitudinal data for registries, research and trials. The global patient-registry software market was estimated at $2.25 billion in 2025, providing a commercial benchmark for this infrastructure.

UK rare-disease population
3.5M+

Estimated number of people in the UK living with a .

Average rare-disease diagnosis time
5.6 years

Reported average time from first symptoms to an accurate diagnosis.

Patient registry software market, 2025
$2.25B

Estimated global market for software supporting patient registries and .

Rare diseases with approved treatment
<5%

Share of rare diseases currently estimated to have an approved treatment.

Comparable Outcomes

Oncology patient data

Flatiron Health

$1.9B acquisition

Flatiron built oncology electronic-health-record software and curated real-world datasets used by care providers and researchers. completed its $1.9 billion acquisition of Flatiron Health in April 2018.

Connected patient data

Propeller Health

$225M acquisition

Propeller combined connected inhaler sensors and software to collect medication-use data from patients outside clinical settings. acquired Propeller Health for $225 million in January 2019, adding a platform built around continuous patient-generated data.

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Sources

This profile was built from public company materials, ecosystem sources, market references, and professional profiles.

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